I've heard Lyme disease referred to as the Great Imitator, and the Disease of a Thousand Faces. My personal pet name for it is Death by a Thousand Cuts. Anyone who has had Lyme disease knows how accurate these name are.
Lyme disease induces such a large immune reaction in the body that difficulties arise all throughout the body, even if the bacteria is not present in a particular area, trouble can occur there (Harris, 2008). I've always understood this as the body kind of having a civil war. Damage can be done in every body system, and because of this, Lyme disease is commonly misdiagnosed.
According to Dr. Steven Harris, symptoms are very unique to the patient, however, there are a few symptoms which most Lyme patients complain of:
migrating pain
migrating arthritis
inflammation
muscle pain
muscle twitching
headaches
major "earth pulling me down" fatigue
and major sleep disturbances
Although the rash associated with Lyme disease is well known, 50% of patients proven to have Lyme disease don't remember a rash (ILADS, 2009). While a rash is a common symptom, the lack of a rash does not rule Lyme disease out.
Lyme disease has been misdiagnosed as MS, ALS, Fibromialga, Parkinson's, Chron's Disease, Arthritis, Multiple Chemical Sensitivity, and more (Harris, 2008).
Because the bacteria can pass the blood brain barrier, many patients also develop ADD, Mood Disorders, Bipolar, and Psychosis (Williams, 2008). These symptoms can sometimes occur before physical symptoms do (Williams, 2008). When a patient is being treated for Lyme, the psychological symptom can worsen, and when that happens, patients can become depressed, detached, and walk away from treatment (Williams, 2008).
Personally, Lyme disease caused arthritis, syncope and other heart problems, weight fluctuations, insomnia, persistent and vivid nightmares, major stomach pain, horrible fatigue, memory loss to the point that I didn't know my name when I woke in the mornings, trouble concentrating, chronic nasal infections, chronic bronchitis, low blood pressure, and some bipolar tendencies.
I have found that many doctors won't even consider that a person has Lyme disease if they don't remember a rash, or if they come up with a negative ELISA test. The International Lyme and Associated Diseases Society (ILADS) stresses that a rash is not as important for diagnosis as most doctors think, and that the ELISA is too inaccurate to solely rely upon.
The importance of clinical diagnosis is why I was misdiagnosed for so many years. Many doctors didn't seem to want to believe that a little girl was as sick as she claimed. I encourage anyone who is sick to listen to and believe what their body is telling them. Learn from my mistake. Don't stop trusting yourself or searching for answers.
Disclaimer: This information is meant for educational purposes only.
References:
Harris, Steven Dr, Williams, Lynda Dr. Lyme Disease 101 Interview with Dr. Steven Harris and Dr. Lynda Williams.Radio interview KVMR 89.5 FM. 2008.
ILADS. Basic Information About Lyme Disease. International Lyme and Associated Disease Society. www.ilads.org. 2009.
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